This is where I should be.

I know that I have said this before, probably many times, but my teachers are amazing. The support at this college is amazing and probably exactly what I need to succeed. And the thing is, if I went to a big university, no matter how prestigious it may be, I wouldn’t get this support. There’s just no way that that could happen.

There have been a few events that have transpired in the past week or so and if not for my teachers, I don’t know how I would have handled it. How many teachers, college teachers no less, would tell you “email me any time, vent to me any time. I’m here.” Or, “I believe that you can do this (when talking about my journalistic future).” It’s just absolutely so meaningful to me. They may not know it but I appreciate their time so much. And one of my teachers sat down and talked to me for over an hour this morning. It’s time that I know that they probably don’t have (they’re college teachers, they have things to mark, meetings, other students, etc) but the fact that they will sit down with me for over an hour to talk futures, to talk hardships, to talk about anything is so great. And I so appreciate it.

My friend is waiting for me to run to our photography class so I will end it at this. If you guys are by chance reading this, thank you. You’re the best and your support is invaluable.

Moebius Syndrome Awareness Day.

Tomorrow (January 24th, 2014) is Moebius Syndrome Awareness Day as I am pretty sure everyone is aware of now.

I’m sure that you all have see my barrage of posts about MSAD.

So, why is this day so important to me? It is important because it is such a rare condition that there is not much information out there about it. It is up to those of us with Moebius to teach everyone about it because if we don’t, who will?

I am a Moebius Syndrome ambassador and I do take this very seriously. I believe that we are all on this planet for a reason and I really do believe that my purpose in life is to educate people about Moebius. My life hasn’t been easy, but I feel that educating people is the key. If we educate people now, then the future generations with Moebius will have it a lot easier than I did and then a lot of you probably did.

I think that it is really important to include the Moebius kids in this day. It is so important for them to see that they can achieve whatever it is that they want in this life. I don’t want them to feel held back because of having Moebius, like I once did. I want them to know that although there may be challenges along the way, they can achieve their dreams and goals. They can and they will.

I am so grateful to the amazing people at my college.. my teachers and my friends. They are some amazing people and I have gotten nothing but support from them and for this I am grateful.

It took me a lot of years to feel adequate and like I had a place in this world. I don’t want anyone with Moebius to feel like they don’t belong anywhere because I know that they do belong. There is always a place. One of my journalism teachers last semester said to me “I don’t want you to think that you’re any different than anyone else because you’re not.” These words have stuck with me and they apply to each and every one of you. They do.

Never feel alone, because you’re not. We have this amazing network of Moebius family and we always will stick together. I know that I can count on them for anything and for this I am thankful.

 

Go out tomorrow, wear your purple loud and proud and like Tim said in his video, be proud of who you are.

To everyone who is supporting me by wearing purple, I thank you from the bottom of my heart. I really appreciate everything and it means the world to me. I will be holding an event at my college. It will be me at a booth handing out info brochures, bracelets, etc. My best friend has graciously offered to come help me. This means so much to me as it will take some of he pressure off and not be so awkward. Thanks, dude! ❤

 

We can make a change in this world and I know that we will.

 

Moebius Syndrome Awareness Day 2014 will be amazing.

New year, new semester.

Happy new year. everyone!

So, semester two of my first year of college starts in three days. Obviously I am not as nervous as I was for my first semester. I now know what to expect and I know the people in my classes. Most importantly, I know my way around campus. I got lost so many times in September.

I’ve been asked a lot if I am looking forward to the new semester. The answer to that is yes and no. I love this program, I love writing so I am excited to jump into the new semester, start afresh and get back to writing. The negative side of this is that I just found out that my photography class got switched to a new teacher. I have most of the same teachers that I had last semester for my other classes so that’s not an issue. My photography teacher was my favourite teacher. He was amazing, to say the least. I am trying not to sound gushy here but I don’t know the best way to explain the situation. If it were not for him, I would not have passed the class. There’s not doubt in my mind that that is true. He took so much of his time to help me learn the concepts, help me with assignments and he took an hour of his time to go over the final with me to explain the questions that I got wrong. This may not seem like much, but it was in the last days of the semester and I know that he didn’t have the extra time to take to sit with me and go over the questions but he did anyway.

The thing is that for me, opening up and actually talking to teachers is really hard. I didn’t talk to my photography teacher much at the beginning of the semester. There are two reasons why it’s awkward for me. One reason is that when I do talk to a teacher who doesn’t know me, I feel like they’re inwardly wondering what is wrong with me and moreover, wondering if I am mentally challenged in some way. I know it must cross their minds. Or does it? Maybe when I think that people are judging me, I am really judging them if that makes any sense. The other reason is I hate the awkwardness. I hate it when I say something to them and there is that moment of awkward silence and I just know that they are trying to process what I have said but they couldn’t understand. I’m not blaming them for this, not at all. It’s not their fault whatsoever. It’s just.. embarrassing I guess when they can’t understand what I am saying. I know I have blogged about not letting Moebius get me down. I know I have blogged and said that we with Moebius Syndrome are capable of anything and don’t ever get discouraged. I still do believe that we are capable of doing anything that we want to do, don’t get me wrong. I wouldn’t be in the journalism program if I didn’t believe that. I do. Sometimes it does get to me though. I’m human, I admit it. Sometimes I just can’t look past the Moebius and I know that for some, when they look at me that is all they see. Especially teachers, if they don’t know me.

So what now? I’ve spoken to the Academic Chair and she tried to get me switched back into the other photography class but it won’t work with my schedule. It’s inevitable now that I’ll have a new photography teacher. I feel like this should not be a big deal. It should definitely not be as big of a deal as it is to me right now. I just am dreading having to get to know a new teacher in a class that I really struggled with in the first semester.

I did send an email to my teacher from last semester just thanking him for all the time that he took to help me last semester. He emailed me back wishing me luck and he said to not hesitate to drop by to see him if I needed anything. In a way, this makes me feel a tad better that I can at least still talk to him if I am having problems in photography. But then I can’t really.. He’s not my teacher anymore. There’s only so much that he can do now. Can I get some opinions here? Is it okay to go and talk to former teachers?

I feel weird going on about this but it’s getting me down, it really is. I just want to be honest, and that’s what I promised to do when I started this blog. It’s about transparency and honesty. It’s to give people a glimpse into a life that is affected by Moebius Syndrome and for people to learn what we go through on a daily basis. So yes, adjusting to new teachers and new people is hard. But there is nothing that I can do about it now and I plan to at least attempt to make the best of it. There is always a silver lining, and I really do believe that all things happen for a reason.

New year, new semester, new start. New me.

J7FBr