MSAD 2013

Seriously, why do I only blog at like, 1:00 in the morning? It’s currently 1:15 AM. I definitely shoul be sleeping. Oh well.

So today (January 24th) is Moebius Syndrome Awareness Day, also referred to as MSAD. We have been trying to raise awareness of this for months and the day is finally almost here. What did I do to raise awareness of Moebius for MSAD? I contacted a local TV channel, which is also a national channel, and asked if they would do a story on Moebius. I emailed back and forth with them and a camera guy came to my house and interviewed me about Moebius. They also interviewed a doctor about it as well. I think (and am hoping) that it is going to air tomorrow on MSAD. Hopefully it will reach a lot of people.

Why is MSAD important? I’ve been trying to explain it to my friends on Facebook for weeks. It’s important to me because I really think it is important to raise awareness of Moebius. It’s important because I really think with education about it, we can create a better and more tolerant world. A world without stares, double takes, points, nasty comments, bullying, etc. People need to know (and I said this is my news interview as well) that we with Moebius are no different than anyone else. We all want the same things in life. We all want to succeed, to love and be loved, to live the life that we dream of. We are all very capable of this. I have to remind myself sometimes that I am capable. I may have to do some things a little different than others, I may struggle to do things that others find easy. I may have to look at myself in the mirror and say out loud that I can do whatever I dream and I can reach my full potential. Hopefully, MSAD will reach a lot of people this year. Hopefully future generations with Moebius can have it much easier than I did. And it all starts with raising awareness, which starts with MSAD. We will create a better world for those with Moebius and other disabilities. We have to. We know more than anyone what it is like to live with something that makes us physically different so it is our responsibility to educate people about it, to make people understand what it’s like and to erase the stigma of having a physical difference. I struggle to use the word disability. I really don’t think it is, unless you allow it to be. Maybe in literary terms, Moebius is a disability but I really don’t see it that way. I see it as a unique challenge.

Please wear purple on January 24th and please tell people why you are doing so. Even if you don’t know me, don’t know what Moebius is just simply tell at least one person that it is MSAD. Give them a website to check out.

http://www.moebiussyndrome.com

http://www.manyfacesofmoebiussyndrome.com

Together we can change the world, we can change how people view us and in turn, make the world a better and more tolerant place for everyone. The future is in our hands and we all have the right to pursue it and make it bright.

Have a good MSAD, everyone and raise as much awareness as possible! We can do this! We will change the world.

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